Thursday, March 22, 2012

Half Up, Half Down - Banded Natural Hair with Braid + Dealing With Epilepsy


Hey everyone! I know I haven't updated on the blog in a while but if you follow our Facebook page then you know we have been dealing with a lot here lately. As many of you may know, Miss A had 2 seizures last week, about 12 hours apart. She has absolutely no health issues that we were aware of and never had a seizure before in her life. She was in the hospital for a few days and there was talks of a tumor, brain infection and cysts on both sides of her brain. The doctor officially diagnosed her with having Epilepsy but we don't know what caused her seizures. This is still very new to us and it is terrifying. She is in seizure medication and she is doing better but she still has moments that seem off to me. She will be going in for another EEG in a couple of weeks. She will also be having a sleep study done and I am going to request another MRI because at first the doctor was sure she had cysts and now he "doesn't think" she does. I feel pretty clueless at this point but I am going to remain strong for my little girl. I will try to make a full post next week but I just wanted to update you all and let you all know that is is doing well and I thank you all so very much for your thoughts and prayers.

Picture of her when she was in the hospital. The day she went home. As you can see, she still wanted to play dress up, lol

As you can see from the above picture, Miss A's hair was stretched through banding. If you don't know what banding is, please check out our Banding F.A.Q. post *CLICK HERE* I banded her hair in a few sections for a couple of days using Goody Ouchless ponytail holders (they are very stretchy, cloth and metal free). I used Bee Mine Luscious Moisturizer (As you probably know, this is our fav. Discount code: BBBJAN will get you 10% off, good through March 31st, 2012 www.beemineproducts.com) I planned on styling her hair this week but nothing ever goes according to plan so I decided to do this quick style before we headed out to take Lil Man to speech therapy.  I parted her hair from ear to ear with my fingers. I loosely tied off the top section with a ponytail holder, I then made a space between her hair right above the ponytail holder and flipped her ponytail through that section. I braided the remaining hair and tied it off with another matching ponytail holder. I used a little Kinky Curly Curling Custard to smooth the top section down and viola! All done. Nothing too fancy but very easy and cute.

Don't forget to "LIKE" our Facebook page for more pictures and updates. Please feel free to ask questions and share your own pictures! :-)

xoxo, Nik




32 comments :

  1. Beautiful as usual...

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  2. Just beautiful! Still praying for A <3

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  3. Beautiful! I have a friend with Epilepsy and I know it can be hard but hang in there, im sure she will be just fine! in my thoughts and prayers
    - SP

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  4. Thank you for letting us in your world, we are all wishing A well! Seeing her daily, feels like we know her :)

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  5. Pretty pictures and I will pray for you all

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  6. Beautiful! What a scary time. Praying for health and peace!

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  7. Nik so sorry to hear you guys are going through this! Sending prayers and hugs your way! A is such a beautiful girl!

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  8. I don't have a Facebook page, but I can relate to the fear & confusion when you see your child laying in a hospital bed. I sent a prayer up & will continue to. Prayer does change things. May God be with you all.

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  9. THE BLOOD OF JESUS WILL COVER HER LONGER THAN HER GLORY....PRAYING FOR STRENGTH FOR YOU AND YOUR FAMILY....

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  10. I am so sorry for what you are going through and you and your family are in my prayers. God bless you.

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  11. Your little one is in my prayers and warmest thoughts. I know that God will keep and protect her.

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  12. A u r such a cutie,divine healing has been credited in2 ur account in Jesus Name Amen!

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  13. She looks gorgeous!! I am so glad that she is doing much better!!

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  14. May god be with you and your family. I AM PRAYING FOR YOU.

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  15. I am praying for A and for your family!! God bless!

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  16. I've been rooting for A, and for you and your family to have the strength to get through this! You are such a great mom, it is so apparent by the way that you speak about A, and your son. What a beautiful family! Thank you so much for keeping us all posted, I was so concerned about her!

    Sidenote: My family uses that exact same bible! :-)

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  17. I hope A gets better! Soon, we won't have to worry about all these illnesses.

    P.S. I can't help but notice your Bible....are you a JW because that looks like a New Translation?

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  18. Exactly! Are you a fellow sister?! :)

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  19. I'm so sorry to hear about what happened to A. I can only imagine how scary that must have been for all of you.

    SN: I noticed the Bible too and immediately my wheels started turning! haha So what is the story behind that Bible? :)

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  20. Praying for A. (saw the Bible in the pic too)

    Her hair looks beautiful and when I saw the first pic of her in this post, I was like, "gosh! you have a beautiful daughter!" She's so pretty. :)

    I'll keep A in my prayers.

    ~Samantha

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  21. Prayers and blessings to you and your beautiful daughter...

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  22. You have sucb a beautiful little lady... She is cover in the blood of Jesus.... You & her will be in my prayers....
    **JUST TRUST**

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  23. I've never commented until now but have followed Beads, Braids, & Beyond since October 2010. Epilepsy is what lead me to your blog. Our daughter "K" is 7 and was diagnosed at age 4 and it was after she had a 4-day inpatient EEG that I started searching for information on how to properly care for her curls. That's when I found this site. As I'm sure you're finding out, EEG's aren't easy on our girls' curls! No conditioners, styling products, or braids...at least that's how it is at the hospital where our daughter goes. Banding has been a life saver in preparing for EEG's! Anyway, just wanted to share. When I showed K the post she said, "She has epilepsy too?!" (When we're ready to do hair she likes to look through the gallery to pick which style she wants to wear) She says to tell A she knows how she feels & she hopes she feels better soon.
    Elise

    Sidenote: We ALSO use the same Bible in our family ;)

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  24. Please look into natural alternatives. Google Dr. Sebi. I pray for you and your girl and wish you both the very best. Sometimes it is in the food we eat that makes us ill. The average doctor can't cure you but there is a cure out there you got to keep looking and keep your head up.

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  25. Is that a NWT bible? If it is, I know you have great support.

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  26. Hi!!!
    An amazing treatment for things such as this would be a Bentonite Clay bath. Yes! The thing used in terresentials mud wash. It is actually the same clay that Jesus used to heal the blind man on the road.... :) It pulls out toxins, heavy metals (that are in all of our water), basically anything DANGEROUS!

    Many autistic children have seen positive results with these baths. It's only about 5-7 dollars at whole foods, and if you have anyone sick with arthritis, depression, heavy metal poisoning, or anyone who has just lived in this toxic earth, we all need to do this! You could try just putting in her bath water every night for a week and see results! Do some research about it, I pray you try it!

    Lots of love and blessings
    Hayley

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  27. God bless you guys!

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  28. Praying for your sweet daughter. I can only imagine how lost you feel not having all the answers. Know that your community near and far is holding you in the light and love of the Creator. Many blessings for her healing!

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  29. Hello! I look at your site all the time for my girls hair styles you are so talented. and the girls that you have on here are Beautiful. Me and my family will pray for your daughter and family. God is always with you and will bring her out just fine. i have seen many many Miracles he has done. He can and will do all things. KEEP FAITH.......
    lots of love from the Goggins family

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  30. Unless you have re-done it already, instead of having a repeat MRI, try requesting the images from the MRI and having another impartial doctor look at them. It will save your daughter from having the extra radiation unless it is completely needed.
    Trust me-I've had more WAY more than my fair share of MRIs, EEG, EKG, ECGs, CT Scans, etc.

    Blessings to you and your family

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